Fifth Anniversary Advocating for a Type 1 Diabetes Cure

The Juvenile Diabetes Cure Alliance commemorates five years of being
the voice of the type 1 diabetes donor

NEW YORK–(BUSINESS WIRE)–The Juvenile
Diabetes Cure Alliance
(JDCA) celebrates its fifth year of service
to the type 1 diabetes donor community. The JDCA was founded in 2011 by
Brian G. Kelly, chairman of the board of Activision Blizzard, several
years after his son was diagnosed with the disease.

The JDCA has consistently advocated for a significant increase in
funding for type 1 diabetes cure research, and has evolved to become a
trusted and independent source of fact-based analysis. JDCA publications
are followed by over 75,000 people and the organization has directly
influenced over $25 million of donations for type 1 diabetes.

With the purpose of accelerating speed to a cure, the JDCA challenges
nonprofits to adopt many of the best practices of for-profit companies,
such as transparency, performance-based compensation, accountability to
donors, and focused strategic planning. Many of these managerial
approaches are perceived as unorthodox among nonprofit organizations,
and the JDCA is unique in its advocacy for these practices.

Donor Priorities and Money Use Not Aligned: An Ongoing Call to
Action

Ninety percent of donors, when surveyed, stated that their number-one
priority is to support cure research. Yet only 7 cents of every dollar
given to type 1 diabetes fundraising organizations was used for cure
research, and this amount has been declining for a decade. Unless this
trend is reversed, it is unlikely a cure will be found in the
foreseeable future.

“I believe that the JDCA is doing a very effective job of raising
awareness within the philanthropic community of the need for
organizations who receive charitable contributions to articulate a clear
strategy for finding of a cure for type 1 diabetes and for them to
explain how their donors’ dollars are being deployed accordingly
,
says Geoff Rehnert, co-founder and CEO of Audax Group, and a
founding member of Bain Capital.

During the fall of 2015, the JDCA launched the first annual petition
aimed at restoring funding for type 1 diabetes cure research, which
gained over 21,000 signatures. The second annual campaign will be
launched in the summer of 2016.

“We are proud of the impact the JDCA has made in focusing attention
on the critical need to increase cure research funding,”
says Phil
Shaw, General Manager of the JDCA. “Executives of the main T1D
organizations follow our publications closely but there is still a long
road ahead and we will stay at it until a cure is available for everyone
who needs it.”

About
the JDCA

The JDCA is a privately-funded T1D-focused nonprofit that aims to
empower donors and prompt transparency in the major diabetes charities.
The JDCA has published over 100 reports and invested over 75,000
man-hours.

Become an alliance member: http://thejdca.org/join-the-alliance/

Become a fan on Facebook: https://www.facebook.com/thejdca

If you’d like more information about the JDCA or to schedule an
interview with the JDCA General Manager Phil Shaw, please call
212-308-7433 or email bg@thejdca.org.

Contacts

Juvenile Diabetes Cure Alliance
Brittany Greco, 212-308-7433
bg@thejdca.org