Deion Brown of San Jose was a typical teenager with a healthy appetite. So, he and his mother knew something was wrong last summer when he could no longer gobble up everything on his plate. Instead, hed spend time figuring out how he was going to swallow his food, taking small bites, chewing longer than normal and drinking lots of water in between.
Deion Brown, 16, of San Jose, Calif., can now eat, sleep and gain weight again, thanks to a new endoscopic surgery offered at Lucile Packard Children’s Hospital Stanford. (Photo: Business Wire)
Everything would get stuck right in the middle of my throat, Deion said.
Water helped some, but mostly he ended up regurgitating his food and throwing up often. For the first time in his life, he began losing weight, dropping 2 inches in his waist. Meals with friends became an embarrassment, and he felt tired all the time. Every night before he went to bed, he threw up. Thats because lying down with food lodged in his esophagus was uncomfortable and would keep him from sleeping.
At first doctors thought Deion had allergies, then acid reflux, but after he was treated for both, he still couldnt swallow properly. Finally, a gastroenterologist diagnosed him with esophageal achalasia, a condition in which tight muscle fibers in the lower esophagus prevent food and liquids from passing through to the stomach. Deion was referred him to James Wall, MD, a pediatric surgeon at Lucile Packard Children’s Hospital Stanford and an assistant professor of surgery at the Stanford School of Medicine.
Wall had good news. Not only could he help Deion swallow again, the 16-year-old would be one of the first pediatric patients in the United States to undergo a highly skilled surgery for esophageal achalasia that would require no incisions and result in very little pain, complications or recovery time. Known as POEM per-oral endoscopic myotomy the procedure is conducted entirely through a patients mouth. Instead of performing laparoscopic surgery, which involves making a handful of small incisions through a patients chest or abdomen, Wall works with flexible tools through the mouth to access and divide the tight muscular fibers of the lower esophagus, allowing for the passage of food and liquids.
Deion successfully underwent the POEM procedure in April, becoming Walls second patient to receive the treatment. The first was a 17-year-old girl in February in what is believed to be the first POEM procedure at a childrens hospital in North America. Wall has since performed a third, and all had speedy recoveries. In Deions case, he needed just one dose of Tylenol for post-surgery pain.
He went home the next day and was eating like a champ in two weeks, Wall said.
Wall was assisted in the first pediatric POEM procedure by Homero Rivas, MD, an assistant professor of surgery at the School of Medicine who specializes in digestive and minimally invasive surgeries at Stanford Hospital & Clinics. Rivas introduced the POEM procedure at Stanford in 2012 when only a handful of adult surgeons were offering it in the United States. The minimally invasive procedure was first used in Japan in 2008. Worldwide, over 4,000 patients have undergone POEM procedures, but only 30 of those have been reported on children, all in Europe, Japan and China prior to Walls three patients this year.
POEM is a true innovation and a quantum leap forward, said William Berquist, MD, gastroenterologist at Lucile Packard Childrens Hospital Stanford and professor of pediatrics at the Stanford School of Medicine. Its an increasingly successful procedure that allows for the esophagus to be emptied more effectively, and certainly the least invasive way of fixing problems like Deions.
Deions mother is now doing everything she can to help her son gain back his lost weight.
Hes eating everything in sight now, said Tammy Lewis. Anything I cook, he eats. There is no problem now. It was expert surgery by an expert doctor. Its a big improvement.
There are no scars whatsoever and no chances of infection from incision, Wall said. As a surgeon, having someone return to see you in follow-up without an incision to check is unusual and gratifying. Its obvious that POEM is an effective and innovative way to treat cases like Deions, and were happy to be leading the way in offering it.
About Stanford Childrens Health and Lucile Packard Childrens Hospital Stanford
Stanford Childrens Health, with Lucile Packard Childrens Hospital Stanford at its core, is an internationally recognized leader in world-class, nurturing care and extraordinary outcomes in every pediatric and obstetric specialty from the routine to rare, for every child and pregnant woman. Together with our Stanford Medicine physicians, nurses, and staff, we deliver this innovative care and research through partnerships, collaborations, outreach, specialty clinics and primary care practices at more than 100 locations in the U.S. western region. As a non-profit, we are committed to supporting our community from caring for uninsured or underinsured kids, homeless teens and pregnant moms, to helping re-establish school nurse positions in local schools. Learn more about our full range of preeminent programs and network of care at stanfordchildrens.org, and on our Healthier, Happy Lives blog. Join us on Facebook, Twitter, LinkedIn and YouTube.
Lucile Packard Childrens Hospital Stanford is the heart of Stanford Childrens Health, and is one of the nations top hospitals for the care of children and expectant mothers. For a decade, we have been ranked as the No. 1 childrens hospital in Northern California, according to U.S. News & World Reports 2014-15 Best Childrens Hospitals survey, and are the only hospital in Northern California to receive the national 2013 Leapfrog Group Top Childrens Hospital award for quality and patient care safety. Discover more at stanfordchildrens.org.